Useful Links

National Association for Parents of Children with Visual Impairments (NAPVI)

Useful Links

LINKS TO OTHER RELEVANT PAGES

Organizations; Private and Government Links
Diagnosis Specific Links
Parenting Links
Schools for the Blind in the US Links
Listserves & Chat Rooms

NAPVI State Affiliate Organizations

Vision Connection -- for the latest info on vision impairment, its prevention and rehabilitation

ADVISOR--Assisting the Development of Visually Impaired Students Through Online Resources

Organizations; Private and Government

	American Foundation for the Blind
	The National Agenda for the Education of Children and Youths with Visual Impairments, Including Those with Multiple Disabilities
	Hilton/Perkins Foundation
	Perkins School for the Blind
	Hadley School for the Blind

	Association for the Education and Rehabilitation of the Blind and Visually Impaired
	American Printing House for the Blind
	American Council of the Blind
	National Eye Insitute
	FAPE - Families & Advocates Partnership for Education
	PACER - Parent Advocacy Coalition for Education Rights
	Junior Blind of America
	Division on Visual Impairment of the Council for Exceptional Children
	Helen Keller Services for the Blind
	United States Association of Blind Athletes (USABA)
	National Fathers Network
	Mothers United for Moral Support (MUMS)
	Federal Interagency Coordinating Council (FICC)
	Family Strengthening Policy Center (FSPC)
	National Center on Birth Defects and Developmental Disabilities
	Lighthouse International
	Guide Dogs for the Blind
	American Academy of Pediatrics
	American Academy of Ophthalmology
	American Academy of Pediatric Ophthalmology & Strasbismus
	National Information Center for Children & Youths with Disabilities (NICHY)
	Descriptive Video Service (DVS) from WGBH Boston

	Research to Prevent Blindness
	Foundation for Retinal Research
	Jewish Braille Institute
	Carroll Center for the Blind
	Susquehanna Association for the Blind and Vision Impaired

Diagnosis Specific

	National Eye Institute
	Leber's Congenital Amaurosis (LCA)
	Children's Glaucoma Foundation
	Glaucoma Research Foundation
	Glaucoma Foundation

	Retinopathy of Prematurity
	A Parent's Guide to Understanding Retinoblastoma
	ROPARD - Association for Retinopathy of Prematurity and Related Retinal Diseases
	NOAH - The National Organization for Albinism and Hypopigmentation
	The Achromatopsia Network
	American Nystagmus Network
	ONH/SOD Family Focus (optic nerve hypoplasia/septo optic dysplasia)
	Peter's Anomaly Support Group
	Joubert Syndrome Foundation
	Juvenile Macular Degeneration
	Cancer of the Eye
	Marinesco-Sjogren Syndrome
	Stickler Syndrome
	The United Mitochondrial Disease Foundation
	Batten Disease Support & Research Association
	Cornelia de Lange Syndrome (CdLS-USA Foundation)
	CHARGE Syndrome
	International Children's Anopthalmia Network (ican)
	The Low Vision Gateway

	National Organization for Rare Disorders (NORD)
	Amblyopia Eye Patch Club for Families

Parenting

	VI Guide a guide to Internet resources for parents and teachers of visually impaired children
	WonderBaby.org is a fun and educational website dedicated to supporting parents of visually impaired children
	On-Line Braille Literacy Course sponsored by US Dept of Education. Parents encouraged, stipends available to help support students.

National Parent Information Network A collection of re- sources for parents. Electronic version of pamphlets, brochures, digests, guides, and other materials. Topic examples are: child care (all ages), gifted children, older children, pre-teens, teens, and more.

	Kid Source Education and health care information. Categories such as newborn, toddler, 9-12, parenting etc.
	College Net College search, scholarship search, financial aid, academic resources and more.
	FinAid: The Financial Aid Information Page Free, comprehensive, independent, and objective guide to student financial aid.
	Parent Net Articles, news, tips, and resources for parents.

Parent Soup This site offers resources and advice. It stresses community by offering discussion groups and chats

Positive Parenting OnlineThis site is dedicated to providing resources and information to make parenting more rewarding, effective and fun.

Parenthood Web Pediatricians and psychiatrists respond to your e-mail. There are posted answers to many parenting questions and concerns.

	Early Childhood Link Information on transdisciplinary training & technical assistance for parents of young children with low-incidence disabilities
	Adjustment To Blindness And Visual Impairment is a unique counseling and educational forum for the frank discussion of blindness related issues.
	Special Families
	Children with Disabilites

Schools for the Blind in the United States

	Alabama Institute for Deaf and Blind
	Arizona School for the Deaf and Blind
	Arkansas School for the Blind
	California School for the Blind
	Colorado School for the Deaf and Blind
	Connecticut Institute for the Blind/Oak Hill
	Florida School for the Deaf and Blind
	Georgia Academy for the Blind
	Governor Morehead School-North Carolina
	The Hadley School for the Blind
	Idaho School for the Deaf and the Blind
	Illinois School for the Visually Impaired
	Indiana School for the Blind
	Iowa Braille School
	Junior Blind of America
	Kansas School for the Blind
	Kentucky School for the Blind
	Los Angeles Blind Children's Center
	Lousiana Center for the Blind
	Lousiana School for the Visually Impaired
	Maryland School for the Blind
	Michigan School for the Blind
	Minnesota State Academy for the Blind
	Mississippi School for the Blind
	Missouri School for the Blind
	Children's Center for the Visually Impaired-Kansas City
	Montana School for the Deaf and Blind
	Nebraska Center for the Education of the Blind
	New Mexico School for the Visually Handicapped
	New York Institute for Special Education
	The New York State School for the Blind
	North Dakota School for the Blind
	Ohio State School for the Blind
	Oklahoma Scool for the Blind (Parkview School)
	Oregon School for the Blind
	Overbrook School for the Blind
	Perkins School for the Blind
	South Carolia School for the Deaf/Blind
	South Dakota School for the Visually Handicapped
	St. Joseph's School for the Blind
	St. Lucy Day School for Children with Visual Impairments
	Tennessee School for the Blind
	Texas School for the Blind and Visually Impaired
	Utah School for the Deaf and Blind
	Virginia School for the Deaf and Blind at Hampton
	Virginia School for the Deaf and Blind at Staunton
	Washington State School for the Blind
	Western Pennsylvania School for Blind Children
	West Virginia School for the Deaf and Blind
	Wisconsin School for the Visually Impaired
	Council of Schools for the Blind

Listserves (email discussion groups) & Chat Rooms

	Blind Home Schoolers Discussion regarding (supplemental) homeschooling for blind children. Parents, Teachers, and Teacher's Aides participate in this discussion.
	BVI-Parents is a list for parents of children who are blind or visually impaired to network and share ideas and experiences. If you'd like to join, send a blank message to: bvi-parents-subscribe@associate.com

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