When you see Web Site it indicates a link to that organization's web site.
The Achromatopsia Network
An information and support network for individuals and families concerned with the rare
inherited vision disorder achromatopsia, including both rod monochromacy and blue cone
monochromacy
Action for Blind People
14-16 Verney Road
London
SE16 3DZ
Tel: 0171 732 8771
AER
4600 Duke Street, Suite 430
P.O. Box 22397
Alexandria, VA 22304
1-703-823-9690
Fax 1-703-823-9695
America WALKs
P.O. Box 29103
Portland, OR 97210
1-503-222-1077 office
1-503- 228-0298 fax
E-mail: info@americawalks.org
American Academy of Ophthalmology
Eyenet - provides authoritative information about eye care for the public
American Council of the Blind
1155 15th Street, NW, Suite 720
Washington, DC 20005
1-202-467-5081
1-800-424-8666
Fax: 1-202-467-5085
American Foundation for the Blind
11 Penn Plaza
Suite 300
New York, NY 10001
1-800-AFB-LINE (232-5463)
E-mail: afbinfo@afb.org
American Printing House for the Blind
P.O. Box 6085
1839 Frankfort Avenue
Louisville, KY 40206
1-502-895-2405
Fax: 1-502-895-1509
APHAKIC - Association of Parents Having A Kid In Contacts
A website for parents of young children who, because of aphakia or other reasons, must
wear contact lenses (a very slow site)
Association for Macular Diseases
210 East 64th Street
New York, NY 10021
1-212-605-3719
Aurora of Central New York Inc
518 James Street
Syracuse, NY 13203
(315) 422-7263
Blind Children's Center
4120 Marathon St.
Los Angeles, CA 90029
1-213-664-2153
1-800-222-3566 (USA)
1-800-222-3567 (California)
Bridges for Families
1500 Highland Avenue
Waisman Center, Room 217
Madison, WI 53705
1-608-263-9907
Canadian National Institute for the Blind
Information regarding eye diseases and living with vision loss
The Council for Exceptional Children
CEC Welcome Page
Dallas Lighthouse for the Blind
A multi-service rehabilitation agency providing opportunities for independence to people
with vision impairments
4245 Office Parkway
Dallas, TX 75204
1-214-821-2375
Disabled Living
Redbank House
4 St Chad's Street
Cheetham
Manchester
M8 8QA
Tel: 0161 832 3678
DO-IT
Disabilities, Opportunities, Internetworking, and Technology
Descriptive Video Service
(DVS)
National service that makes television & movies accessible to the blind and
visually-impaired
DREAMMS for Kids, Inc. (Developmental Research for the
Effective Advancement of Memory and Motor Skills)
A non-profit parent and professional service agency specializing in Assistive Technology
(AT) related research, development, and information dissemination
273 Ringwood Road
Freeville, NY 13068-6916
1-607-539-3027
Fax: Same
E-Mail: dreamms@ix.netcom.com
Envision
Envision is a private, not-for-profit agency uniquely combining employment
opportunities with rehabilitation services. Anyone who is legally to totally
blind is eligible.
2301 S. Water
Wichita, KS 67213
E-mail: ralph.manganiello@envisionus.com
Fiesta Educativa
Dedicated to Empowering Families of Persons with Disabilities
FOCUS (For Our Children's Unique Sight)
2571 Pico Place
San Diego, CA 92109
1-619-273-1473
E-mail: daphari@adnc.com
Foundation Fighting Blindness
Executive Plaza 1, Suite 800
11350 McCormick Road
Hunt Valley, MD 21031-1014
1-800-683-5555 (410-785-1414)
The Foundation for Blind Children
Providing education, counseling, media and technology services to blind and visually
impaired children and their families
Genetic
Alliance
4301 Connecticut Avenue, NW, Suite 404
Washington, DC 20008-2304
1-202-966-5557
Helpline: 1-800-336-GENE (4363)
Fax: 1-202-966-8553
E-mail: info@geneticalliance.org
Glaucoma Foundation
33 Maiden Lane, 7th Floor
New York, NY 10038
1-800-452-8266
1-800-832-3926
E-mail: glaucomafdn@interramp.com
Glaucoma Research Foundation
490 Post Street, Suite 830
San Francisco, CA 94102
1-800-826-6693
E-mail: info@glaucoma.org
Helen Keller National Center
1-516-944-8900
INTACT
Commission on Tactile Graphics for Blind and Visually-Impaired People
International Federation of Pedestrians (FIP)
An organization dedicated to pedestrian issues
For more information, contact:
Ralph B. Hirsch, Secretary-General
3500 Race Street
Philadelphia PA 19104-4925, USA
1-215-386-1270
Fax: same
E-mail: hirsch@igc.org
Jersey Pedestrians Association
An organization dedicated to pedestrian issues
For more information, contact:
Geraint Jennings,Chair
102 Rouge Bouillon
St Helier, Jersey, Channel Isles, GB
01534 280778
FAX: 01534 280778
E-mail: geraint@itl.net
Keystone Blind Association
Dedicated to the joint missions of maintaining and improving the quality of life
for blind and/or visually impaired persons, preventing blindness, and providing
employment opportunities and advocacy for persons who are disabled.
1230 Stambaugh Avenue
Sharon, PA 16146
Phone: 1-800-837-4122
Fax: (724) 347-2204
E-mail: kba@infonline.net
Late-Onset Tay-Sachs Foundation
1303 Paper Mill Road
Erdenheim, PA 19038
Phone: 1-800-672-2022 or 1-215-836-9426
The Lighthouse, Inc.
111 East 59th Street
New York, NY 10022
1-800-334-5497
Fax: 1-212-821-9705
Macular Degeneration Foundation
P.O. Box 9752
San Jose, CA 95157
1-408-260-1335
E-mail: eyesight@eyesight.org
Macular Degeneration International
2968 West Ina Road #106
Tucson, AZ 85741
1-520-797-8010
Fax: 1-520-797-8018
E-mail: tperski@aol.com
Massachusetts
Association for the Blind
200 Ivy Street
Brookline, MA 02146
1-617-738-5110
Fax: 1-617-738-1247
Mobility International
18 Boulevard Baudouin
B-1000
Brussels
Belgium
Tel: 0032 2 201 5608/5711
Mobility International USA
An excellent resource for anything to do with issues relating to adapting and including
persons with disabilities into international exchange programs
National Accreditation Council for Agencies Serving the
Blind and Visually Handicapped
15 East 40th Street
Suite 1004
New York, NY 10016
1-888-883-9475
NAPVI
National Association for Parents of the Visually Impaired, Inc
PO Box 317
Watertown, MA 02272-0317
1-800-562-6265
Fax: 1-617-972-7444
National Association for Visually Handicapped
Health agency dedicated to serving the visually impaired
The National Braille Association
Works with the Library of Congress to train Braille music transcribers.
3 Townline Circle
Rochester, NY 14623
716-427-8260
National Braille Press
88 St. Stephen Street
Boston, MA 02115
National Eye Institute
Building 31, Room 6A32
31 Center Drive MSC 2510
Bethesda, MD 20892
1-301-496-5248
E-mail: 2020@b31.nei.nih.gov
National Federation of the Blind
1800 Johnson Street, Suite 300
Baltimore, Maryland 21230-4998
1-410-659-9314
National Foundation for Jewish Genetic Disease, Inc.
250 Park Ave, Suite 1000
New York, NY 10017
Phone: (212) 371-1030
National Information Center for Children & Youth with
Disabilities (NICHCY)
P.O. Box 1492
Washington, DC 20013-1492
1-800-695-0285
National Library of Congress
Service for the Blind and Physically Handicapped
National Organization for Albinism and Hypopigmentaion
1500 Locust Street #29
Philadelphia, PA 19102
1-800-473-2310
E-mail: noah@albinism.org
National Organization for Rare Disorders
NORD is committed to the identification, treatment, and cure of rare disorders through
programs of education, advocacy, research, and service
National Organization of Parents of Blind Children
National Federation of the Blind
1800 Johnson Street
Baltimore MD 21230
1-410-659-9314
National Organization on
Disability
The National Organization on Disability promotes full and equal participation of
America's 54 million men, women and children with disabilities in all aspects of
life.
National Rehabilitation Information Center
NARIC library and information center on disability and rehabilitation
The National Resource Center for Blind Musicians
David Goldstien, Director
c/o Music and Arts Center for the Handicapped
600 University Avenue
Bridgeport, Connecticut 06601
203-366-3300
National Tay-Sachs & Allied Diseases Association,
Inc.
2001 Beacon Street, Suite 204
Brookline, MA 02146
Phone: 800-906-8723 or (617) 277-4463
Fax: 617-277-0134
E-mail: NTSAD-Boston@worldnet.att.net
Parent Education Project of Wisconsin
2192 S. 60th Street
West Allis, WI 53219
1-414-231-8382
Prevent Blindness Texas
3211 West Dallas
Houston, TX 77019
1-713-526-2559
PXE International
Support groups for Pseudoxanthoma Elasticum
Recording for the Blind & Dyslexic
(RFB&D)
Serves people who cannot read standard print due to visual, perceptual or physical
disability
ROPARD
The Association for Retinopathy of Prematurity and Related Diseases - Ropard
funds clinical research to eliminate ROP and to fund work leading to new low
vision devices and teaching techniques. The website contains a comprehensive
bulletin board, bibliolography and links to other resources
Royal National Institute for the Blind, UK
Challenging blindness
SIH - The National Swedish Agency for Special Education
Information available in Swedish and English
Singapore Association for the Deaf
227 Mountbatten Road
Singapore 397998
Republic of Singapore
Tel: +65-344-8274
Fax: +65-345-7706
Singapore Association of the Visually Handicapped
47, Toa Payoh Rise
Singapore 298104
Tel: +65 251-4331
Fax: +65 253-7191
Stargardt International and Juvenile Macular Degeneration
c/o Macular Degeneration International
2968 W Ina Road # 106
Tucson, AZ 85741
1-520-797-2525
Fax: 1-520-797-8018
E-mail: tperski@aol.com
Texas Commission for the Blind
4800 North Lamar
Austin, TX 78756-3175
1-512-459-2500
1-800-252-5204 (Voice or TDD)
Fax: 1-512-459-2685
Texas Higher Education Coordinating Board
CB Report
The Association for Persons with Severe Handicaps (TASH)
11 Greenwood Avenue North
Seattle, WA 98133
1-206-361-8870
Fax: 1-206-361-9208